Newsletter « Yayasan Senyum Bali | Bringing Health Care To People With Craniofacial Disabilities

Senyum Update 16

Cleft Operations Project-Ende & Soe, NTT

Yayasan Senyum Bali’s mission is to bring health care to people with craniofacial disabilities; this is including both clefts lip and palate. It is the yayasan’s mission also to be able to assists patients from all over Indonesia particulary Bali, NTB and eastern part of Indonesia.

The Yayasan is proud to be in partnership with Badan Koordinasi Kegiatan Kesejahteraan Sosial /BK3S (Coordinating Council for Social Welfare Activity) of Kupang Nusa Tenggara Timur and the local government bodies.

This partnership results findings of large number of Cleft patients, which then followed by Cleft operation Projects. The first Projects as reported in our previous Senyum update was done in November 2009.

The Second Operation project was held On 24th to 28th July 2010 in Ende, NTT where 54 operations were successfully done .this project was also supported by team of medical surgeons and doctors from Universitas Brawijaya Malang, under the supervision of Prof.Dr.dr.Bambang Pardjianto, SpB,SpBP. Followed by another batch of operation in Soe, scheduled for 1st to 5th August 2010. Number of operation scheduled to be operated in Soe is 50 operations.

The Founder & Chair of Yayasan Senyum Bali, Mary Northmore accompanied by the Yayasan’s operations manager, Sukma Dewi visited Ende for this occasion to meet the patients and all parties involved in the projects.

Not only cleft patients, we have also found a serious case of Craniofacial-Noma, which is need further follow up and treatment in Denpasar because this case can not be handle locally .

The Yayasan hopes to be involved in more of this kind of project in the future.

Senyum Update 15

In February 2010, Yayasan Senyum Bali officially moved to the new, permanent Smile House at Jl. Pulau Aru No.9, Sanglah, Denpasar. We are very grateful and very eager to share this happiness with all of our friends so on April 24th, Yayasan Senyum Bali opened our house by inviting friends and the public to attend and rejoice together at the Smile Housewarming. This event was also attended by Governor of Bali, Made Mangku Pastika, the Australian Ambassador, Bill Farmer, friends of Yayasan Senyum Bali, neighbours and current residents.

Bapak Pastika and Mr Farmer agreed that the existence of Yayasan Senyum Bali is very supportive of the efforts to bring health to communities in Indonesia, especially Bali and the eastern islands. This mission is appropriate to the Bali provincial government programs in health and social development, as stated by Mangku Pastika. Therefore, Yayasan Senyum Bali will also get full support from the government.

On this occasion Mangku Pastika also thanked the Australian government who have actively included their medical expertise in this community empowering program. And Mr Farmer also said that he appreciates and supports what is being done by the foundation, and hopes that similar efforts can occur in all parts of Indonesia.

Smile House is not only a building without a soul. If we look deep inside, there is a lot of life puzzles and each piece tells its own meaningful story. It is about the journey of the Yayasan, about the kindness and affection of donors, about the determination of the patients and their families. All above it encourages us to always care for one another. From this small step we take, Yayasan Senyum Bali wants to bring a giant leap for the Balinese and their surroundings, in order to smile even more brightly. (mel)

Download here - Senyum Update 15

Senyum Update 14

Yayasan Senyum Bali has beehelped and accomodated many people with craniofacial disabilities throughout the year. To enhance this succes and to help even more patients it is necessary to move to bigger accomodation.

In February we will finally be able to continue our work in a brand new, bigger building which was designed specifically for our needs and donateed by a very generous donor. It is located on Jl. Pulau Aru No.9 in Sanglah, Denpasar. Instead of five rooms we will have eleven rooms there. So we can host twice as many patients as before. We will also be able to offer the patients a nicer recreation area. Furthermore the office of the staff will be bigger and very modern when it comes to technical equipment. Therefore we can give even more efficient and better work in the future.

Download here - Senyum Update 14

Senyum Update 13

Previously on Senyum Update we had Hajariah who had finished her first surgery in Sanglah General Hospital. She was scheduled to attend Prof. David’s clinic on this October to be examined by him. It is our pleasure to report that she is in a good condition and ready to receive her nose reconstruction in the next couple of months.

As for this edition, In August we had one patient, 6 years-old little Yanti, who departed to Adelaide with her mom. She suffers from pfeiffer syndrome that affects her behavior and intelligence because of her condition, nevertheless she is very cheerful and a lovely daddy’s little girl. She was scheduled to have her surgery in September and it’s about time for her to come back to Indonesia. We can’t wait to see how the result’s going.

Also we had Rustiani who went to Adelaide this month to get treatment after suffering from fiborous displatia since she was 13 years-old. She attended Prof. David’s Clinic in May 2009 and the doctors agreed she should be sent to Adelaide.

Download here – Senyum Update 13

Senyum Update 12

It’s been three months now and we’d like to tell you about what’s been going on lately at Yayasan Senyum Bali. Just a quick review from the last Senyum Update, we had three patients return from Adelaide, Nyoman Mangku, Sapirah and Zaetun Eni.

Sapirah has had her first operation for face reconstruction and is now waiting for the second one, which hopefully will be done within the next six months.

‘Miracle baby’ Mangku went to Adelaide for a check-up. The doctors are happy with his progress and will be scheduling a further operation in the next year or so when he is a bit older.

Zaetun Eni has completed her surgery and is now ready to enjoy her new life back in her Village. She was diagnosed with a right tessier cleft and in March 2008 she commenced her first round of surgery under Dr. Asmarajaya in Bali. Then in February 2009 Zaetun again commenced pre-operation treatment in Bali prior to flying to Adelaide for her final surgery at the Australian Cranio Facial Unit (ACFU) in the Women and Children’s Hospital in

Adelaide, South Australia. Zaetun returned to Bali at the end of April 2009 after her trip to Adelaide and these pictures show how amazing the result has been.

As well as the three Adelaide patients we also had Hajariah who suffers from the same condition as Sapirah and Erika, a 9 month old baby who was born with a unilateral cleft lip. Hajariah received her operation on 2nd June 2009 here in Bali at RSUP Sanglah in Denpasar and she has been scheduled to be examined by

Professor David during his visit in October. Erika has now completely finished her operation in RSUP Sanglah and is now about to step into a better life just like any other normal child.

Download here – Senyum Update 12

Senyum Update 11/April 2009

Between February and April 2009, four patients have been sent to ACFU Adelaide for surgery. Sapirah and Zaeton, both from Lombok, are currently in Adelaide to have their surgery and treatments. Yuliani, a 9 year old girl also from Lombok, departed on 16th March and has now returned after successful surgery (see photos before and after-above right).

The fourth patient is Nyoman Mangku Astawa, our miracle baby who had his first surgery in Adelaide in 2007 and has now departed to Adelaide for his 2nd surgery. We wish all our patients well and we shall have more stories on them in future updates …

Senyum Update 11

News Events

The Smile Foundation of Bali

News Letters

Senyum Update 16

Patient Stories

Titi Hariani